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Sickle cell inherited from both parents, stop blaming mothers –Haematologist

By Rebecca Okine

Haematologist at the University of Cape Coast, Professor Ivy Ekem, has urged Ghanaians to stop blaming mothers for giving birth to children with sickle cell disease, emphasising that the condition is inherited from both parents.

She explained that the disorder is a genetic condition requiring genes from both mother and father. She noted that it is scientifically inaccurate and socially unfair to place sole responsibility on women.

Delivering a public lecture to commemorate the 50th anniversary of the Ghana Institute of Clinical Genetics, Prof Ekem clarified that a child can only be born with sickle cell disease if they inherit the gene from both parents.

She further highlighted that the condition manifests in different forms, including SS and ST, and that individuals’ experiences may vary.

Prof Ekem also sought to correct the misconception that all people with sickle cell disease are constantly ill. While some may experience frequent health challenges, she explained that many individuals live full and healthy lives with proper care and management.

She encouraged a shift away from the term “disease” toward a more accurate understanding that reduces stigma.

She noted that the high number of carriers, around 20 per cent of the population, underscores the scope of the challenge.

Prof Ekem emphasised the importance of community education and awareness campaigns to combat misinformation and discrimination.

She praised the Ghana Institute of Clinical Genetics for its 50 years of service, including providing care, conducting research and advocating for public education.

In closing, Prof Ekem called for a collaborative approach involving healthcare professionals, families and community leaders to support affected individuals, improve outcomes and reduce stigma.

She stressed that addressing sickle cell disease is both a medical and societal responsibility.

Ghana faces a significant burden from sickle cell disease, with approximately 2 per cent of newborns around 15,000 babies each year,  born with the condition.

Tragically, the Sickle Cell Foundation of Ghana estimates that about 10,000 of these children die before their fifth birthday.

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